You are invited to walk with Ashley Staggs to raise money for Narcolepsy research and increase awareness!

I was diagnosed with Narcolepsy in 2014. Each day is a challenge, even with proper medication and ridiculous amounts of caffeine. Just this morning, I’ve experienced several issues due to this rare disease. I faintly heard the sound of my alarm and reached over to turn it off. I was in a foggy haze and felt so tired. I remember telling myself “Okay, you’ve got to get up. Get up. Don’t fall back asleep, don’t fall back asleep...” Zzzzzz. 20 minutes later I woke again, angry at myself for not being able to do something so simple like wake up, angry with the disease, and frustrated that I had less time to get ready for work since I was already running late just starting the day. Then, I progressed with the twice a day battle of my hour long commute, constantly reminding myself not to close my eyes (even though it was dark, rainy, and perfect nap weather), to take another sip of your Diet Mountain Dew, and turn the AC up again. Every day is work for me but hopefully by raising awareness and money for research, the people with this disease and their families will have the support they need and more options available to them to fight it. So please join me in a 2-3 mile walk, donate to the cause, or just spread awareness!

Where: SIUE Gardens, Edwardsville, IL

When: May 19, 2018 at 9:00am CST 

Walkers of every kind will gather for the sixth annual DREAM BIG! Walk on May 19, 2018. From power walkers to leisure walkers, dog walkers to little ones just learning to walk, it is a fun-filled event for everyone. Last year, people from across the country participated in the e vent, which raised narcolepsy awareness and funds for Narcolepsy Network.